Blackbelly/Santo owner and chef Hosea Rosenberg and his wife, Lauren, found out earlier this year their 3-year-old daughter, Sophie, had a rare genetic disorder, multicentric carpotarsal osteolysis (MCTO).
Since, they’ve launched the nonprofit Sophie’s Neighborhood to raise funds to find a cure or treatment. In just the last couple of months, they’ve raised $250,000 of their $2 million goal, which will fund the research needed to find a cure.
So, on July 19 (National Ice Cream Day), stop by Lucky’s Bakehouse & Creamery, Blackbelly, Santo, Gelato Boy or Fresh Thymes in Boulder and purchase a designated Sophie’s Ice Cream Social item, and some proceeds will go to Sophie’s Neighborhood.
You can also participate in a bake sale organized by Cookies4Cures, a nonprofit started by Boulder 10-year-old Dana Perella, wherein you’ll buy some cookies and proceeds will go to help find a cure for Sophie.
All the details on both events can be found at sophiesneighborhood.org/fundraise.
And, most importantly, the fundraising so far has enabled the Rosenbergs to make progress on finding a cure — they’ll soon begin a research project with the scientist who discovered the gene that causes MCTO; and after connecting with MCTO patients around the globe, they’re building a patient registry and history study, which is critical to developing treatment.
